Centre for Policy on Ageing



Barriers to obtaining consent in dementia research — implications for surrogate decision-making
Author(s)	Shari A Baskin, Jane Morris, Judith C Ahronheim
Journal title	Journal of the American Geriatrics Society, vol 46, no 3, March 1998
Pages	pp 287-290
Keywords	Dementia ; Research ; Social ethics ; Court of protection ; Social surveys ; United States of America.
Annotation	Absence of functional surrogate decision-makers is a major barrier to research and clinical decision-making for hospitalised patients with advanced dementia. In this study, almost 50% of 146 eligible subjects could not be enrolled in a study of palliative approaches to care of advanced dementia - 68 because of an inability to engage the subjects' surrogates in the consent process (22 because of absence of a functional surrogate), and four because their surrogate refused consent. These findings not only hinder clinical research in end-stage dementia, they also have implications for medical decision-making for this vulnerable population. (RH).
Accession Number	CPA-980821003 A
Classmark	EA: 3A: TQ: JVC: 3F: 7T
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...from the Ageinfo database published by Centre for Policy on Ageing.